I can't lie though, I've had some hard days. Last week alone I had five doctor appointments, five days in a row, along with three therapy appointments back to back. The last appointment was an overnight hospital stay with a sleep study to see how June's CPAP mask for her sleep apnea would work. All seems to be well and we are now just waiting for the machine so we can hook her up and give it a try at home. Praying that she keeps the mask on her face all night, every night so she'll be more energetic during the day. It's really up to her. Do you know any babies that keep masks on at night?
June's glasses prescription has also changed. Back in October she started yanking her glasses off, as if to say, "I don't need these annoying things anymore." Her opthamologist said the prescription change was significant enough that she would have ripped them off for sure. My therapist also suggested that maybe we change her frame style because they were sitting close to her face. I popped the lenses out and tried them on her. Sure enough. Her beautiful long lashes were sticking out from the frame at least a centimeter. Imagine that every time you blink your lashes hit an invisible wall. Obnoxious. I changed them to the only other option. Traditional Pink Wire (boring). We'll see how she does when she gets them this week.
It's been one of those months where June is making incredible progress. Just yesterday she responded to a command for the first time ever. She was about to slide down the stairs head first and I said, "Turn around!" and she stopped, looked up, smiled, turned around, and went down the stairs (2 steps) the correct way. Yay! And just yesterday, she was eating and she signed the word "more" for the first time ever...and has continued to with things she really likes. She's also been cruising all over the place and even sitting for a little while on her own...which has been a milestone we've been eagerly awaiting!
I know you have laundry to fold.
Oh-and pictured below is June with her Papi (my dad). My therapist gave us these glasses that light up. They really promote some great eye contact!
so glad she is making progress... i have laundry to fold, laundry in the washer and the dryer but i am going to bed and leaving it all for tomorrow.
ReplyDeleteYAY JUNE BUG!!!!! LOVE that she is listening to you :) (I just finished folding the laundry) Love you all!
ReplyDeleteahhhh! eye contact! and sitting up! and responding to commands! this makes my day :)
ReplyDeletePraise God for these blessings and milestones sweet June is reaching! I had just come on your blog last night (probably while you were typing this one) to look for some updates on your sweet girl! She has incredible potential that girl, she is of course a child of a King! Hugs to you friend and miss you!
ReplyDeleteLove, love, LOVE the pictures with her Papi! (we have a 'Papa' and there is such a sweet relationship between a little girl and her G'pa). What a wonderful post and AMEN to the incredible progress. God knew what He was doing when He laid that little angel in your arms. Big hugs
ReplyDeleteThat sounds like phenomenal progress - wow! Go June!
ReplyDeleteThose are some great glasses!:)
cried happy tears reading this! Wow! She's going to show everyone that God doesn't have to stick within the description of a diagnosis! Proud of you for continuing to deal with the tedious drs appts & therapies because you know what is best for your precious little girl!
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