There is hope. Isn't there always? He said he thinks little June may surprise us and he obviously does not know the extent of each one of these diagnoses. She's only 18 months. The diagnoses may change with time and with testing. These are labels. We have not found causes yet.
I now have a vision for my sweet girl. I can see her when she is 5...dancing on the beach in her pink tutu, frolicking in the water with her little quirky self and giving me that contagious giggle because she's having conversations with the angels.
Good thing there's an eternal plan.
"For I know the plans I have for you declares the Lord. Plans to prosper and not to harm you, plans to give you a hope and a future. Then you will call upon me and come and pray to me, and I will listen to you. You will seek me and find me when you seek me with your whole heart." Jeremiah 29:11-13
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| Little Miss Pilgrim |
i love the positive outlook you have with all this. May God continue to bless you and your little girl and may she continue to brighten your days with her smile and laughter. You all all in our prayers
ReplyDeleteOh Katie, you are on my heart & in my prayers. Please continue to let us know how we can support you as a body in any practical ways, or things you need prayer for. Your strength & hope is amazing. Thanks for being an encouragement to us all!
ReplyDeleteGod has a plan and your daughter is a beautiful part of it all... thank you for sharing the news so we know better how to pray for you and your family!
ReplyDeleteDear Katie,
ReplyDeleteThank you for openly sharing your life with other mothers and friends. Not only are you honest but you are encouraging and positive through this. Huge hugs from SC... I will keep you in my thoughts and prayers. I subscribed to your blog a few days ago and look forward to your updates.
My much youngest brother has cerebral palsy. If you ever want to chat about it or have questions please contact me anytime.
I love the picture of her with her glasses on and the picture of Iva June with a pilgrim hat on! She is adorable! :)
Oh Katie, such a sad but freeing moment you had today. Our Heavenly Father has his hands complete covering sweet June, and you and Rich. I remember the moment sweet Iva June was born...waiting and waiting and finally hearing her lullaby on the intercom, knowing she was finally here. And getting to take care of her in those first precious hours was a gift and an honor. I will continue to pray for her to defy all the odds and for you both as you parent her and learn about all she has to offer in this life. I sure miss seeing your sweet children and their glowing smiles. Hugs to you from KS and miss you my friend!
ReplyDeleteI can empathize, diagnosis is bittersweet.
ReplyDeleteI want to kiss her little face right this minute, she is so precious. I can't believe how much she looks like James as the pilgrim. My prayer for you is that you will be reminded of the truth that regardless of the cause, which you may never know, you can be absolutely certain that her Creator designed Iva June specifically how she is for a very beautiful purpose & placed her exactly where she belongs to bring about His plan.
Medical technology continues to astonish me, I have little doubt that as she grows she will benefit from the progress they have made.
<3 and your sweet little girl so much!!
thank you for sharing your heart in this update. we will continue praying for you, rich, james and june. iva june was created by God ~ for a purpose ~ and he has a plan for her life. please let us know how we can help. hugs to you all!
ReplyDeleteI love when she talks to the angels... I love you so much. such a good mommy. kiss the munchkin for me <3 in my prayers - of course!
ReplyDeleteWhat a week you have had.(I am thankful God sent your mom to be with you.) Our love and prayers are with you, Rich and your family. I pray that He will grant you to be strengthened with power through the Holy Spirit in your inner man so that you may be rooted and grounded in love and may know the breadth and length and height and depth of the love of Christ which surpasses knowledge, that you may be filled up to all the fullness of God. (Eph. 3:16-19)
ReplyDeleteKatie,
ReplyDeleteGod always knows what will happen and He is in control! Rest in Him.
This verse always helps me and hope it will help you too.
As for God, His way is perfect, the word of the Lord is tried; he is a buckler to all them that trust in him. 2 Sam 22:31
You are in our thoughts and prayers!! :)
You all are so loved by us! I have always had a special place in my heart for Iva June. Praying for strength and peace as you process this information. May you all be continually surprised by our God who is able to do more then we can ask or think. xoxo
ReplyDeleteHon, this site is beautiful! I am praying that the eyes of our hearts will be open so that we can see things as God does...that sweet June is fearfully and wonderfully made. Her frame was not hidden from our Lord as she was woven together in the secret place. And all her beautiful days have been ordained already. For you my dear Katie, my prayer is that each morning will bring you "word of our Lord's unfailing love, for I have put my trust in Him. Show me the way I should go for to you I lift up my soul." Always hold on to God's truths when the way gets difficult. I love you girl! Janel
ReplyDeleteThank you all for these most encouraging words. I am cherishing each one and saving them for a "rainy" day. Love to you all.
ReplyDeleteThese three things continue forever: faith, hope, and love. And the greatest of these is love. 1st Corinthians 13:13 June has been given the power blessing of love. When you hold her in your arms, love oooozes from her. And we have been given the hope and faith to believe for her, the things that she cannot realize for herself....yet. We love you all, mom and dad
ReplyDeleteThe day I read this blog update, I also was reading in Isaiah 30:20-21, "Although the Lord gives you the bread of adversity and the water of affliction, your teachers will be hidden no more; with your own eyes you will see them. Whether you turn to the right or to the left, your ears will hear a voice behind you, saying, "This is the way; walk in it." Praying for God's guidance and palpable presence for you on this journey.
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